Comments on: Factor V Leiden and DVTs: Interview with Elizabeth Varga, MS, CGC http://talk.dnadirect.com/2007/03/07/factor-v-leiden-and-dvts-interview-with-elizabeth-varga-ms-cgc/ Your Genes, Your Health, Your Choices Thu, 04 Dec 2008 21:01:08 +0000 http://wordpress.org/?v=2.3.2 By: toni truscott http://talk.dnadirect.com/2007/03/07/factor-v-leiden-and-dvts-interview-with-elizabeth-varga-ms-cgc/#comment-148205 toni truscott Wed, 29 Oct 2008 19:42:18 +0000 http://talk.dnadirect.com/2007/03/07/factor-v-leiden-and-dvts-interview-with-elizabeth-varga-ms-cgc/#comment-148205 Could you recommend a diet for someone taking Coumadin Could you recommend a diet for someone taking Coumadin

]]> By: Lisa Lee http://talk.dnadirect.com/2007/03/07/factor-v-leiden-and-dvts-interview-with-elizabeth-varga-ms-cgc/#comment-138325 Lisa Lee Thu, 04 Sep 2008 16:49:02 +0000 http://talk.dnadirect.com/2007/03/07/factor-v-leiden-and-dvts-interview-with-elizabeth-varga-ms-cgc/#comment-138325 Dear Katie, I am very sorry to hear of the medical problems you have been having. I'm not a healthcare provider and it sounds like you need to find someone to see you about what has been going on right away. The symptoms you described are not how Factor V Leiden typically cause symptoms, but that is something you definitely need to talk to your doctor about. Things sometimes happen in unexpected ways. What I can tell you is that Factor V Leiden is inherited. If your first cousin on your father’s side has at least one Factor V Leiden variant, then your chance of having one too is about 12%. If your first cousin has two Factor V Leiden variants, then your risk to have one also is about 25%. Based on your family history alone, you may want to consider testing for Factor V Leiden. If you're positive, then your children may want to consider testing. I do hope that all will turn out well for you and your family. Dear Katie, I am very sorry to hear of the medical problems you have been having. I’m not a healthcare provider and it sounds like you need to find someone to see you about what has been going on right away.

The symptoms you described are not how Factor V Leiden typically cause symptoms, but that is something you definitely need to talk to your doctor about. Things sometimes happen in unexpected ways. What I can tell you is that Factor V Leiden is inherited. If your first cousin on your father’s side has at least one Factor V Leiden variant, then your chance of having one too is about 12%. If your first cousin has two Factor V Leiden variants, then your risk to have one also is about 25%. Based on your family history alone, you may want to consider testing for Factor V Leiden. If you’re positive, then your children may want to consider testing.

I do hope that all will turn out well for you and your family.

]]> By: Katie Wagner http://talk.dnadirect.com/2007/03/07/factor-v-leiden-and-dvts-interview-with-elizabeth-varga-ms-cgc/#comment-135471 Katie Wagner Mon, 25 Aug 2008 11:51:23 +0000 http://talk.dnadirect.com/2007/03/07/factor-v-leiden-and-dvts-interview-with-elizabeth-varga-ms-cgc/#comment-135471 Dear Lisa, I am 57 yr old fe, with recent episodes of syncope (2), each time I fell to the right side, and lost consciousness for brief periods. I was alone each time (empty nest). First time I fell in such a way I broke my left great toe, 2nd time, I received a nasty black eye (r). A MD. co-worker asked about my eye and strongly suggested f/u, my MD took a full hx, but I forgot that I recently learned my father's side of family (his cousins and their children have factor V Leiden, and have had DVT/PE. My father had a PE at age ~ 62yr. No one questioned the cause of the clot. Now with this info. I am wondering if I might have it as well. I have called to leave a msg with my MD with this. She is thinking I may have had a small stroke, since each time I fell to the right. There is a strong F. HX of DM and I had gest diab with 2 of my pregnancies, and had Preterm labor with 2 (term deliveries fortunately). I have done much reading this wk end (saw the MD on Fri), to day is Sun. night. I occassionally seem to have tunnel vision and a few months ago I felt like I was having a stroke (tightness in head), I also had a very severe headache a few days before my last fall (one wk ago). I have two college age daughters both are on OCP's. IF, I test pos. I assume that I should have all my children (2 girls 1 boy) all tested. I think I should have my father tested as well. He has type 2 DM and is on insulin, he also has HBP. I will suggest my sister age 51 be tested as well. Any other suggestions? Thanks for your assist. Dear Lisa, I am 57 yr old fe, with recent episodes of syncope (2), each time I fell to the right side, and lost consciousness for brief periods. I was alone each time (empty nest). First time I fell in such a way I broke my left great toe, 2nd time, I received a nasty black eye (r). A MD. co-worker asked about my eye and strongly suggested f/u, my MD took a full hx, but I forgot that I recently learned my father’s side of family (his cousins and their children have factor V Leiden, and have had DVT/PE. My father had a PE at age ~ 62yr. No one questioned the cause of the clot. Now with this info. I am wondering if I might have it as well. I have called to leave a msg with my MD with this. She is thinking I may have had a small stroke, since each time I fell to the right. There is a strong F. HX of DM and I had gest diab with 2 of my pregnancies, and had Preterm labor with 2 (term deliveries fortunately). I have done much reading this wk end (saw the MD on Fri), to day is Sun. night. I occassionally seem to have tunnel vision and a few months ago I felt like I was having a stroke (tightness in head), I also had a very severe headache a few days before my last fall (one wk ago).

I have two college age daughters both are on OCP’s. IF, I test pos. I assume that I should have all my children (2 girls 1 boy) all tested. I think I should have my father tested as well. He has type 2 DM and is on insulin, he also has HBP. I will suggest my sister age 51 be tested as well.

Any other suggestions?

Thanks for your assist.

]]> By: Lisa Lee http://talk.dnadirect.com/2007/03/07/factor-v-leiden-and-dvts-interview-with-elizabeth-varga-ms-cgc/#comment-65434 Lisa Lee Mon, 22 Oct 2007 18:40:40 +0000 http://talk.dnadirect.com/2007/03/07/factor-v-leiden-and-dvts-interview-with-elizabeth-varga-ms-cgc/#comment-65434 Hi brandy, I'm very sorry to hear what you have gone through with FVL. You are definitely not alone in your experiences. I can't speak to the specific risks of surgeries for children. Please check out NATT, which I mentioned above to Ann, and <a href="http://www.fvleiden.org/" rel="nofollow">FVLeiden.org</a>. There you can meet other families and medical experts who can provide great support and information. All the best, Lisa Hi brandy, I’m very sorry to hear what you have gone through with FVL. You are definitely not alone in your experiences. I can’t speak to the specific risks of surgeries for children. Please check out NATT, which I mentioned above to Ann, and FVLeiden.org. There you can meet other families and medical experts who can provide great support and information. All the best, Lisa

]]> By: brandy http://talk.dnadirect.com/2007/03/07/factor-v-leiden-and-dvts-interview-with-elizabeth-varga-ms-cgc/#comment-64543 brandy Thu, 18 Oct 2007 20:23:18 +0000 http://talk.dnadirect.com/2007/03/07/factor-v-leiden-and-dvts-interview-with-elizabeth-varga-ms-cgc/#comment-64543 I see that I am not alone in having factor v leiden.... I had 2 children before I found out I had it. I had a stroke that blinded me in one eye and another that caused seizers. When I found out I was pregnant with my daughter I had to take hepren shots 2 times a day. After she was born we found out she had it too. Now she has to have minor oral surgery and it has to be done at the hospital because of risks of clots. Does anyone know how bad the risks are. I am scared to death she may have a stroke too. I don't feel like the doc. takes this as serious as I do. Should I be so scared? I have read alot about this but not much on the risks of surgeries. Thanks I see that I am not alone in having factor v leiden…. I had 2 children before I found out I had it. I had a stroke that blinded me in one eye and another that caused seizers. When I found out I was pregnant with my daughter I had to take hepren shots 2 times a day. After she was born we found out she had it too. Now she has to have minor oral surgery and it has to be done at the hospital because of risks of clots. Does anyone know how bad the risks are. I am scared to death she may have a stroke too. I don’t feel like the doc. takes this as serious as I do. Should I be so scared? I have read alot about this but not much on the risks of surgeries. Thanks

]]> By: Lisa Lee http://talk.dnadirect.com/2007/03/07/factor-v-leiden-and-dvts-interview-with-elizabeth-varga-ms-cgc/#comment-36020 Lisa Lee Tue, 22 May 2007 19:43:28 +0000 http://talk.dnadirect.com/2007/03/07/factor-v-leiden-and-dvts-interview-with-elizabeth-varga-ms-cgc/#comment-36020 Hi Ann, I'm glad you found this info and forum. I suggest you check out the information at <a href = "http://www.nattinfo.org/" rel="nofollow">National Alliance for Thrombosis and Thrombophilia (NATT). They are a wonderful resource for people who know their genetic status, like you. Since you are currently working with a specialist (Dr. Konkle), s/he will have the best insight into your individual situation. If you have questions that aren't getting answered, you might want to get a second opinion from another thrombophilia specialist. Best of luck to you! Lisa Hi Ann, I’m glad you found this info and forum. I suggest you check out the information at National Alliance for Thrombosis and Thrombophilia (NATT). They are a wonderful resource for people who know their genetic status, like you. Since you are currently working with a specialist (Dr. Konkle), s/he will have the best insight into your individual situation. If you have questions that aren’t getting answered, you might want to get a second opinion from another thrombophilia specialist. Best of luck to you! Lisa

]]> By: ann gnias http://talk.dnadirect.com/2007/03/07/factor-v-leiden-and-dvts-interview-with-elizabeth-varga-ms-cgc/#comment-35999 ann gnias Tue, 22 May 2007 16:13:40 +0000 http://talk.dnadirect.com/2007/03/07/factor-v-leiden-and-dvts-interview-with-elizabeth-varga-ms-cgc/#comment-35999 It's nice to finally have someone to talk about my problem. I had total shoulder rep. in nov. five days later I developed a pulmonary embolism they think it came from my arm and the surgery. Since my two sisters and my mother had a stroke they gave me genetic testing I tested homozygous for MTHFR factor and Prothombin Gene mutation I tested heterozygote they have me on warfarin for 6 months one doctor says I need to be on for life Dr. Konkle a thrombosis specialists says I do not have to be on for life the risk for a arterial clot is mimimal and should get warfarin if I have surgery again. I am trying to find out my risk. Do you know of any materials I can read on this subject and how do we make people aware of clot danger they usually don't find out the person has a problem until after the clot kills them. I was lucky my doctor got me to the emergency room in time ann gnias It’s nice to finally have someone to talk about my problem. I had total shoulder rep. in nov. five days later I developed a pulmonary embolism they think it came from my arm and the surgery. Since my two sisters and my mother had a stroke they gave me genetic testing I tested homozygous for MTHFR factor and Prothombin Gene mutation I tested heterozygote they have me on warfarin for 6 months one doctor says I need to be on for life Dr. Konkle a thrombosis specialists says I do not have to be on for life the risk for a arterial clot is mimimal and should get warfarin if I have surgery again. I am trying to find out my risk. Do you know of any materials I can read on this subject and how do we make people aware of clot danger they usually don’t find out the person has a problem until after the clot kills them. I was lucky my doctor got me to the emergency room in time
ann gnias

]]> By: Tara http://talk.dnadirect.com/2007/03/07/factor-v-leiden-and-dvts-interview-with-elizabeth-varga-ms-cgc/#comment-24319 Tara Fri, 13 Apr 2007 23:59:06 +0000 http://talk.dnadirect.com/2007/03/07/factor-v-leiden-and-dvts-interview-with-elizabeth-varga-ms-cgc/#comment-24319 Elizabeth, I don't know if this is a spot to ask a question but maybe I can get an answer. I iam 20 weeks pregnant and have Factor V leiden. I have not had a blood clot before so I am not taking anything. I have been getting nosebleeds and was wondering if that could have anything to do with clotting? Thank you if you can help! Tara Elizabeth, I don’t know if this is a spot to ask a question but maybe I can get an answer. I iam 20 weeks pregnant and have Factor V leiden. I have not had a blood clot before so I am not taking anything. I have been getting nosebleeds and was wondering if that could have anything to do with clotting? Thank you if you can help!

Tara

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